It’s Disability Pride Month Which, I have to admit, I’ve only just discovered! I’m not ‘proud’ to be disabled but I’m certainly not ashamed or awkward about it either. I am proud of how I’ve learned to deal with being Dyspraxic and and having Hypermobilty Syndrome over the past 40 years (with an astounding amount of ignorance and attitudes bordering on ableism from Dr’s).
Here is the awesome super lightweight, fold-up chair (even the back folds down) which I bought for car travel. It’s sparkly electric blue ✨💙✨
To be independent I need to be given an electric wheelchair. Because of my disabilities I have muscle weakness and chronic fatigue, so the GP gave me a self propelled chair which I’m unable to use BECAUSE OF MY DISABILITIES. How’s that for sick irony? Apparently this is ‘a very common mistake if it’s a GP who’s made the referral’ the man told me as he was delivering it and taking it away again.
I’m having another phone consultation with a GP on Tuesday and (after arranging this myself) I’m being properly assessed by a Physio from Social Services Neuro Team soon. I must mention that Manchester and Thameside Social Services have been more understanding, knowledgable, kind and professional over my disabilities in just four months, than most Dr’s have been in four decades!
I’m chuffed to bits that these are all still alive and thriving, several weeks after planting. I’m doing my best to water but not over-water them. Difficult when I’m only awake for around twelve hours a day so I don’t know how sunny or shaded it’s been earlier on.
Hello lovely people! Someone suggested it might be a nice idea to share my weight gain and consequent health journey with you.
The reality of me being so thin and also unhealthy in my late 20’s early 30’s:
I was ALWAYS cold; if I got ill I’d become under weight and weak so easily; if I fell down (which I am prone to do when fatigued/not concentrating) I’d get really hurt because I had no padding over my bones; I struggled carrying my heavy boobs around on such a narrow frame and always had a bad back. I was so pale and not olive skinned like I should naturally be (which I covered up with fake tan).
BUT I was constantly told by people that I looked amazing and should feel grateful that I was ‘so skinny’.
I honestly thought through my 20’s and early 30’s that it was normal for young people to be over-worked, slightly stressed and to push their body to it’s limits and then prop it up with caffeine, sugar and beer/cocktails because that seemed the social norm at the time.
How I got healthy in my 30’s:
I mostly cut out foods containing gluten and dairy as I have an intolerance to them (meaning the body doesn’t absorb nutrients from those foods as it can’t digest them properly but it can, confusingly, make people look fat/bloated in places). I eat regular balanced meals with enough protein. I priorities sleep (even though that means saying no to morning invites). I don’t push myself to the limit of my strength and energy for fear of missing out (using up all of my body’s resources). I got a full blood work-up and found I was totally lacking in B12 and Vit D (no wonder I was so weak, brain fogged and grey!).
Even though I have MS now, I still feel healthier overall these days!
Has wanting to gain or loose weight prompted you to start a health journey?Let me know what you think in the comments!
It’s been International Women’s Day today. Have you done anything nice or supportive for a special women or yourself today?
I’ve done lots of little selfcare things. 😌
Even if you don’t have any women in your life, you can support women’s charities or RT important feminist issues and news (both good and bad) on your social media to spread awareness.
I’m also looking to buy more auto-biographies by inspiring women with powerful and wonderful life stories. The last autobiography I read was by Tina Turner, who has had to deal with abuse and chronic illness but who has also had an amazing career and has found love later in life.
Any suggestions for autobiographies?
I have to give a shout out to the character of Tank Girl who, back in the day, was the only young woman (fictional or IRL) who’s style and attitude I could identify with. She taught me it was okay to not act ‘girly’ and look ‘pretty’ and that it was also okay to be confident, or blunt and to kick-ass sometimes!
Which strong women have inspired you in your life?
This time two years ago I posted the photo below to Instagram and said I was having a girly-night to myself and made it sound so positive.
What I didn’t say was that I’d had to go on Just Eat to find somewhere local which sold food and beer/wine because it felt like an overwhelming physical AND mental impossibility to go to the local shops. I was so hungry and really needed something to cheer myself up too.
I’d gotten into the habit of not getting (dragging myself) out of bed until 4.00pm (sadly after it had gone dark) so I hadn’t seen daylight for five days. I’d stopped being bothered to get dressed or comb my wildly frizzy hair or to tidy up.
The bloke had to be elsewhere and he was so stressed and busy he really needed to get on with it and I was trying to be as supportive as poss. But I was on my own all week, until weekend and felt really lonely. But I also felt guilty and silly bothering him.
I realise looking back that the Depression had crept back but at the time I was kidding myself that I was having fun enjoying not having any responsibilities or structure.
Ironically that is exactly what helps me, as it stops the endless days and nights all blending together. Plus someone to bounce my thoughts off so they aren’t swimming around in my head and growing more negative and repetitive is vital for me.
I wish I’d put an honest caption on Insta about how I was feeling at the time or told my Dad or my bloke how I felt. BUT I’d been fighting for decades to have my disabilities and chronic illness recognised and to get on ESA benefit so I could rest at home all day. I felt guilty that I wasn’t now happy and thought I must be being ungrateful or overly-dramatic. But actually, when you can’t or aren’t doing much, whole days and nights alone can seem like an eternity.
After doing this on repeat for about a month (literally just living for the weekend when my bloke would be able to come back basically) I phoned him in floods of tears.
We talked for an hour and worked out a better way of doing things and it made a vast amount of difference to my mental health.
There isn’t always a reason though. Sometimes clinical depression can hit you for no reason at all and that’s perfectly normal, not your fault and just as valid.
If you are feeling crappy or apathetic to stuff you normally love doing or are struggling to keep your head above water, please don’t fool yourself you are ‘fine’. Admit to yourself that you aren’t feeling okay and then tell someone else, even if it’s just one other person (i.e. a considerate family member, a friend, an empathetic friend of a friend or your GP for instance) IRL or online.
You don’t have to be fine all of the time and forcing yourself to try can do more damage than good. Being open and honest about your feelings can lift a huge weight.
This has quite a thick consistency but still glides on easily. Soothing Aloe and Banana extracts. Good colour payoff but I should have chosen Cherry as it’s too pale for me. My lips are really happy with it and so is my purse!
This doesn’t glide on easily but it is hydrating and moisturising with Shea Butter and Cocoa Butter. Sensibly priced for something you would use everyday. The Garnet shade would be a moody sort of nude for people with olive – darker skin tones.
Anyone else hate the title of this, just me?! The colour of this balm only shows up on the palest part of my wrist, it’s that sheer. It works wonders on dull, dry, dehydrated skin. I apply this on my lips, my cheekbones, the tip of my nose and my chin to instantly make me look fresh and awake too.
A tube full of air! I was half way down the tube, squeezing with both hands before any of it came out. I love the colour but it’s too thick to spread consistently. This felt great on my lips at first but when it wore off (rather quickly) my lips felt dryer than they were before!? More like lipstick than a balm. Contains active ingredients of Olive Oil, Paw Paw and Aloe.
This oil (with Almond Oil with extracts of Cherry) works well and stays put, without feeling too thick or goopy. I love the retro packaging but sadly there isn’t any colour pay off, just a very subtle iridescent shine.
*In the above image I called this colour ‘Sugar’ by mistake*
Which one’s would you use? Do you have any recommendations?
Hello lovely people! Between the wind, rain, cold and central heating it’s no wonder our skin can become sensitive, dehydrated and dry, or like mine, freak out and become oily and dry in different places.
A really light, easily absorbed daily moisturiser which can be layered with serums and balms. This moisturiser contains (plant based) Squalane to improve moisture balance and elasticity, Peptides to protect skin, B3 to brighten and even the complexion and Hyaluronic Acid to help the other ingredients sink deep into the skin.
This serum uses repurposed coffee extract, which is rich in antioxidants and rosehip and jojoba oils to brighten and care for dry, dehydrated skin. I apply this serum and before it sinks in completely I apply moisturiser, which helps the moisturiser to sink in easily. It does have a tiny tingly sensation at first but doesn’t make my skin flush or react.
This has the most delicious chocolate scent! It also has the most amount of oil (cacao seed butter and Shea butter) and scrubby bits (cacao seed powder) in anything I’ve ever used before. It’s really easy to hold in your palm and one melt covered my whole body. I don’t think I’ll have dry skin again for the next year! Okay, a slight exaggeration there.
I normally have very cold hands so I was worried that I wouldn’t be able to use this but it melted into my palms straight away! Containing Cocoa Butter and Apricot Kernel Oil, this cream is both hydrating and moisturising, without clogging pours or creating an oil slick on your pillow.
Quite the dream team and all plant based!
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