Monthly Round Up – September

Now the weather has cooled my chronic fatigue and brain- fog has calmed a bit. Unfortunately this makes my ADHD (self diagnosed as a teen but wildly obvious) a lot worse. It’s like I’ve drunk three espressos all of the time. Nice to have some energy and my quirky personality back though! 😄 It took me five six attempts to be able to write this properly. 😆

Style

MY SLIPPERS
CUTE…
CREEPY (but very adorkable)

My ‘sensible dress’ which I hardly ever wear. However, I got so many compliments on it (over on my Instagram) that I’m going to wear it a lot more.

Food

We went to Allotment Vegan Eatery in town, which had beautiful food and cozy decor but would have been too dear if we hadn’t taken advantage of the government ‘eat out to help out’ scheme.

Had a lovely meal at Sai Spice in Chorlton. Here are leftovers of Mutter Panner (peas and cheese which tastes nicer than it sounds), Young coconut and green beans and vegetable Kolpahuri which was really piquant!

Vegan and gluten free cheese-on-toast using Genius bread and Follow Your Heart, Pepper Jack flavour. Wow!

Beauty

After three months of loosely following The Curly Girl Method (but with other products) my hair is shiny and soft, with less frizz AND holding it’s curl shape.

Lifestyle

The most geeky and awesome book I have ever read! This is like the crazy dreams I’d have regularly as a kid in the 80’s.

Still writing down happy things that have happened, as and when they occur, so I can read them back when I’ve been having a succession of shitty mental/physical health days, to give me some perspective.

Watching

Dark – Complex, family oriented sci-fi

Boardwalk Empire – Sprawling 1920’s Gangsta series set in Atlantic City

Hero’s – Series featuring time travel and a big cast of characters discovering they have unique powers.

The Months Most Used Emojis

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Really looking forward to a chilly but beautiful Autumn and Halloween of course. 🦇

🖤✨Chrissie✨🖤

How Not To Be Late All Of The Time

  • I’ve struggled terribly for years with keeping track of time, planning my time and executive functioning (getting around to doing tasks). For me, this is due to my Autism and Dyspraxia but I know it’s a general problem for so many people. Do you often get so (hyper) focussed on doing a single task that you loose all sense of time or often get too distracted by irrelevant tasks?
  • Here are the coping strategies for being on time, that I’ve learned over 30+ years:

  • Get everything ready the night before by putting all of the essentials in your bag or together in a pile (which you have to walk past on the way out).
  • Plan your outfit and/or make sure your shoes/bag/coat are clean and presentable beforehand.
  • To figure how long it will take to get ready break down your daily routine into tasks, then assume each task is going to take a few minutes longer than you would think.
  • At the start, factor in ten extra minutes for zoning out or hyper-focussing on something or for one of those ‘Oh crap, I’ve properly arsed this up’ sort of moments.
  • If you are able, get into the habit of agreeing on a time to meet up a bit later – even though (in your head) you are still aiming for the original time – to give yourself a margin.
  • Set an alarm or a timer to go off half way through the time you have left to get ready, to give you some perspective on how you are doing.
  • Don’t rely on public transport/a lift/taxis to be on time either and allow for rush hour traffic.
  • Now you should fall into the middle of the time slot you’ve mentally and socially allocated yourself.
  • If you are still late sometimes? Try not to stress. Shit happens.
  • 🖤✨Chrissie✨🖤
  • Signs of Dyspraxia/Aspergers in Females and My Own Quirky Examples

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    I’m approaching this post from my point of view of being female with Dyspraxia and Asperger’s – a high functioning (sometimes) version of Autism. It’s really difficult to tell where Dyspraxia ends and Aspergers begins as symptoms overlap regularly and quite often people have both. Here are some behaviours which are related to Dyspraxia and/or Aspergers that are only obvious in children/teens/young adults if you know what to look for. Clearly no one in my life new about these and were just totally perplexed as to why I was so different, including myself. Hopefully this post will make things easier for parents who are confused or anyone who can relate personally.

    Skipping the crawling stage

    Lots of babies with Dyspraxia/Autism/Developmental Disorders go straight from sitting and reaching out to walking. It’s like we just don’t have that crawling instinct in us so we just copy what we see: Lots of people walking around! I used to pull myself up and wobble my way around the room going from couch to couch at a really early age. My parents and Paediatrician thought this was astonishing progress but it’s actually more of a red flag of a hidden condition.

    Sensory issues (SPD) with food, clothing, noise, light, touch or movement 

    This can just be Sensory Processing Disorder in-and-of it’s self but I find it’s often related to Dyspraxia and/or Aspergers. Sometimes it’s the texture of the food that the child might struggle with or too many flavours in their mouth at once. I used to eat everything on separate fork-fulls as it never occurred to me to mix them but I didn’t mind if different foods touched on my plate.

    I was highly sensitive to the texture of fabric (and still am). Anything vaguely rough i.e. not soft, used to make me itch and squirm like crazy! Also sitting on cheapo carpet for story time, I’d have to sit on my coat. I also need weight on me to feel snuggly and calm. So even in the middle of Summer I can’t sleep without a duvet on me. I remember my Mum telling me every time I’d be upset I’d wrap myself in this really soft and (more importantly I realise now) rather heavy blanket, and I’d instantly calm down. That way I could ‘feel the outside of my body better.’ Google ‘proprioception’ for more on that.

    As a kid high pitched noises or unexpected alarms were totally debilitating for me. Even slightly high pitched sounds cause me physical pain so I have to wear noise cancelling ear plugs to concerts.

    My eyes have always be light sensitive so these days I have transitions lenses in my glasses and a great pair of sunglasses that are polarised and anti-glare.

    I’m mostly under sensitive to touch and movement, meaning as a kid I loved my hair platted, brushed and cut but I know some kids find this painful and stressful even when it’s done gently. This also worked both ways so my version of tag usually involved clumsily and accidentally rugby tackling people to the floor – oops!

    I loved swinging, bouncing, jumping, rocking motions, anything with speed and movement. I found it really exciting and calming in equal measure. I’ve gotten more sensitive to movement as I’ve gotten older though.

    Questioning and Analytical Personality

    From a young age, maybe seven or eight, I started wondering about EVERYTHING. What is the meaning of life? Why can’t we feel the earth spinning and why don’t we get dizzy? If we evolved from Apes will we evolve into something better than human or is this as good as it gets? If fate existed then who would decide it? Why do different people around the world all think that their god is the real one? Are there aliens out there and would they think that we were the aliens if they saw us? I’d contemplate these things with my best friend for at least half of playtime each day and then we’d go home and ask our parents these baffling and sometimes amusing questions.

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    Issues with Co-ordination, Balance and Spacial Awareness

    Our bodies internal compas and steering tends to be badly calibrated, making it hard for us to do things like throw and catch a ball, ride a bike and swim. I only learned to ride a bike when I was 7 and my mate lent me hers (mine still had stabilisers on) and pushed me down a gentle grassy hill. For once, momentum worked in my favour. When I’d try to throw a ball my hand would open to late and I chuck it at the ground in front of me. Same for catching, I’d react too late because my brain couldn’t process the fast movement and it would just hit me.

    I tend to use the word ‘proprioception’ instead of ‘spacial awareness’ as your body’s proprioception helps you judge the objects around you, your own limbs and how much space both things occupy and the space between them. A person who cannot automatically judge this will end up bouncing off things, walking into things, falling over things, tripping up over their own feet or throwing drinks at their face when drinking from an over-sized (and therefor unfamiliar) cup etc. I get bruised daily from having poor proprioception. I also do not possess the natural reflex to put my hands up when I fall or if someone suddenly throws something at me, so I’ve amassed a rather wonderful collection of scars.

    Difficulty with Spontaneous and Unstructured Play

    At the age of around three Mum dropped me off at a play group to learn social skills and how to exist separately from her. The assistant suggested I might like to go on the slide after me pointing at it while jumping up and down enthusiastically the moment we got there. When my Mum came to pick me up it turned out that’s ALL I had done. For an hour. My Mum was a little annoyed that the assistants hadn’t suggested to me that I do something else because she knew that it wouldn’t naturally occur to me, even though I was surrounded with other things to play with. I hadn’t talked to any other kids either, again because it hadn’t naturally occurred to me that this is what I was meant to be doing, simply because no one had explained this was an option.

    No Idea of Boundaries or What is Unsafe

    Oddly enough, considering my lack of communication with little kids my own age, I would enthusiastically say a loud “Hiya!” to any adult within 12ft. As I was getting older I started acting fearlessly when it came to jumping off stuff that was too high or climbing giant trees or standing up on swings and wondering if it might be fun to let go of the chains (it really wasn’t). Oddly enough, I was stupidly scared of going on fairground rides with the theory that if I couldn’t cope with it, I’d essentially be stuck on the bloody thing until it finished. Having tested this logic a couple of times as an adult – with literally sickening consequences – I now stick rigidly to it!

    At the age of 10 I got chatting to one of the keepers at the zoo we were visiting who was around 18 I reckon. When I say chatting, it was more strolling and chatting to the point where my parents where tagging along behind. My ability to make this guy laugh and to ask questions that he actually found interesting, both pleased and worried them equally and I think they were very glad that he was a zoo keeper and not some random man! I think this behaviour also ties in with being able to communicate/feeling more comfortable with people who are much younger or older than ones self.

    Not Getting the Natural Rhythm and Impulse Control in Conversations.

    I would butt in constantly because a) I would mistake someone taking a breath or pausing to think, as them finishing their sentence. b) It would take me so long to process what someone was saying and think of a response, that they would have moved onto another topic. I’d suddenly blurt out (but actually I’d been waiting for a gap in conversation and missed many of them) what my thought on their previous topic was and they’d look at me like I was nuts. c) I’d be constantly saying “Oh I did that as well.” or “Well, when I did that…” not because I was self absorbed but because I was delighted to have something in common with some one (proving I was normal) and I really empathised with them. Not the best idea though when someone is trying to tell you something important that’s bothering them or what they did well etc.

    Sometimes I blurt out something which is meant as a compliment and certainly sounded like it in my head but seems to get lost in translation between my brain and my gob. As a teen I enthusiastically said to a lad I fancied “Your hair gel makes you look like Sonic The Hedgehog!” I thought Sonic was The.Best.Thing.Ever at the time but everyone laughed and the poor kid just looked mortified. Oops!

    Something that amuses me is when I’m deep in thought with an imaginary scenario going through my head I might end up saying a bit of it aloud or doing the corresponding facial expressions. I swear my imagination has a life of it’s own and not just in my really vivid hyper-real dreams. Something that drives my bloke mad is when I don’t answer him because I’ve thought the answer in my head so strongly that I’m sure I have said it aloud already.

    I tend to take people with dry humour very literally, even though I’m quite dry humoured myself. With expressions that I might not have heard before, it never occurs to me that it’s a tern of phrase and I take those literally as well.

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    Memory and Concentration and ‘learning difficulties’

    I’ve put ‘learning difficulties’ in quotes because I think a lot of people with Dyspraxia and/or Aspergers are usually fairly bright but struggle to learn things because of short term-memory, recall, sequencing and concentration probs. As a kid in class I would have this whole amazing adventure in my head and I mean an epically long adventure. What completely escaped me was the fact I only had just under an hour to get it down on paper so a) It should be a manageable length and b) I should start writing as I went along, not think it all up first and then start writing five minutes before the end of the lesson. When these two things were explained to me I attempted some vague time management but again and again I disappeared into my own thoughts where it was like time stood still.

    My recall is useless, it’s like I know I know something but I can’t figure out where my brain has stored that piece of knowledge. In Junior school my hand would fly up and I’d look chuffed that I knew the answer but when the teacher picked me I’d just sit silently with a very confused look on my face as the answer slid away the more I tried to think of it. I confidently told the teacher once “Give me a minute, It’ll come back to me.” and everyone laughed, apart from the teacher who frowned and told me “Question and answer time doesn’t work like that as you well know!” I didn’t know or should I say I hadn’t remembered how structured it was. After that, I didn’t put my hand up again until I was well into high-school many years later.

    When you notice absolutely everything it’s hard to filter out what’s not relevant to be able to concentrate. The sound of the clock ticking, the smell of someone’s deodorant (or lack of it), what the weather is doing outside, how tight the neck of your top is, what you’d like for dinner, that joke about the llama you heard last night, why is there a stupid silent ‘gh’ in words like ‘night’. Ah, right, what was I doing again? Why is this in my hand? Ooh, I can use it as a clue!

    Sequencing (thinking straight) and Logic

    My thought processes seem to go from A-B-D-A-E-D and then No! Now it’s ALL slipped away! Those logic questions like ‘If Suzanne had 12 apples and she shared 3 with Bobby and…” Bloody Suzanne and her frickin apples! Why’d she have to share them unevenly anyway! Even as a teenager I would physically have to arrange my pens and pencils into groups as if they were the apples (using them as counters essentially) to be able to answer these questions. My logic does not work in a straight line. I’d think myself into a loop with the same two bits of the equation going round and round yet I’d manage to miss out the third part entirely and I’d go straight to the last bit, then be utterly confounded as to why my answer was wrong.

    In high school I started making notes for maths. Notes which looked nonsensical to anyone else. I was utterly delighted when the teacher said we had to show our ‘working out’ to show her our logic. I made my copious notes in a circle all around the sum and crossed out each one as I used it and proudly handed it in. Her face was an absolute picture! It turned out I had to show my working out in a way that everyone else worked things out or even that part was considered wrong as well. I learned how to write my notes to keep track of all foggy, sum related thoughts on a separate piece of paper, then I’d neatly write down my fake ‘working out’ in the style that they wanted to see in my text book. This meant I took three times as long to do every sum/problem and never finished the page, making the teacher think I didn’t understand the questions in the first place. *face palm*

    Not the case at all. I found a lot of questions in high school – not Science or Maths related – to be mind numbingly boring. Not the actual subjects just the textbook questions so I liked to ask my own, which drove teachers crazy, partly because they didn’t always have the answer and partly because they had a lesson plan to follow. I’d also just go onto the next page of questions which I didn’t realise were supposed to be for the next lesson. Seriously though, four painfully simple questions (where the obvious answers were in the first four paragraphs of the text) were supposed to keep us busy for an entire hour. Oh my gosh the boredom!

    A lot of the time I loose the point of my sentence and then just try to wing it but end up coming to an increasingly quieter waffle that just trails off. It helps to quickly loosely plan the structure of my sentence before I open my mouth when I’m around new people. Sometimes when I’m listening to someone, by the time they’ve come to the end of their sentence, I’ve already forgotten what they said at the beginning. Sometimes when I’m telling someone something I don’t start at the beginning of the sentence so there’s no context to what I’m saying. I tend to recognise that specific confused look on people’s faces these days and quickly (almost as if it’s part of the original sentence) add on what should have been said at the beginning. This makes me backwards like Yoda talk.

    Sequencing issues also apply to the order of letters in a word and the order of the words in a sentence, which is why it’s taking me forever to write this post! If I left this utterly unedited, some words would be unrecognisable and some words would be left out and some words would be repeated twice etc. As well as everything mentioned in the paragraph above. It would read as jumbled up as I think basically.

    Just not getting stuff

    It used to be really difficult for me to weigh up new situations. I don’t naturally have the ability to asses what I’m supposed to be doing or how I’m meant to be doing it straight away. I can’t tell you how many times I’ve just blundered straight into a situation and someone has said “Excuse me! Can I see your ticket?” and I’ve looked at them blankly, having walked right passed a very obvious illuminated ticket office. I remember being totally sensory-overloaded one summer after being stuck in a huge, noisy, meltingly hot cue at the post office, only to find out it was the wrong cue! I was told I’d have to cue up all over again in the right one. I tried to reason with the lady that it wasn’t fair but ended up bursting into tears. It was a really good lesson though as it taught me to just pause for a moment and assess situations first before throwing myself into them. I’m actually really quick at assessing stuff these days because of that.

    After saying all of this I need to state that Dyspraxia/Asperger’s does not effect intelligence unless there are other developmental problems.

    Honesty, Naivety, Tactlessness and Manipulation

    My honesty meant that I was blunt to the point of being tactless. Often if someone was avoiding saying a certain thing or they’d messed up in some way and were trying to wriggle out of it I’d assume that I mustn’t have understood the situation properly (pretty average occurance for me tbh) and so I’d say “Yes, you did! You told her that blah blah…” or “I thought you knew you were supposed to do blah blah because I was there when they told you to.” That made me really popular in the first years of high school!

    My natural in-built honesty meant that up until I was around 11-12 it never occurred to me that people lie. They lie to make themselves look good, feel better, to get ahead, to stir things up or simply to see if you are daft enough (or naive enough) to believe them. I was. Even aged 12-13 I believed that if someone was your friend then they wouldn’t play a joke on you or manipulate you because that’s a mean thing to do and friends are never mean. Wrong! It would take someone else to notice what was going on and point it out (practically bang me over the head with it) before I’d realise. Luckily this stopped when I got friends who were more mature and kind and realised that I had ‘difficulties’ in certain areas that they shouldn’t take advantage of.

    Oddly enough I became a really quick study in reading people as I got into my mid-late teens in order to fit in and appear ‘normal’. I think this is why Dyspraxia/Aspergers is so overlooked in females as we can be great chameleons at blending in enough to pass for being Neurotypical. I’d never just go along with stuff to be popular but I was good at staying quiet and observing peoples tone of voice, or little gestures or how they would back track and subtly change their meaning if what they were saying wasn’t going down well with others. I started to notice people’s pride and the need to be popular and the fact that they were more prone to agreeing to do something if they thought it was their idea in the first place. I also learned that people like people who listen and give just enough advice that’s helpful but doesn’t entirely go against what they ultimately have already decided to do anyway.

    I was becoming, without realising it, a little manipulative. All those years of studying human nature to be able to understand it was meaning I was now able to predict it and use it. I’d say 80% of the time it was just to talk my way out of forgetting something yet again or to hide something quirky thing about myself or to pretend I’d listened to or understood what was being said but the other 20% was to get my own way. I found it easier than people respecting me enough to take my opinion seriously, especially when I was struggling to explain it properly. Plus, when I couldn’t mentally keep up with group conversations to be able to give my input at the time, manipulation was a handy short cut to steer things the way I chose later on. I was only strongly presenting the pro’s of what I wanted to do and none of the cons but still kinda manipulative.

    Turns out I was so emotionally guarded (to make sure I didn’t get my very fragile emotions hurt), sarcastic (sometimes I was being serious), ironic (again thanks to my many observations of situations), totally calm in stressful situations (naturally detached) that my group of friends thought I was actually kinda cool. Bahaahaa! No. Apparently I was also cool because they (mistakenly) thought I didn’t care that much about social norms and had a strong sense of self. It was more that I just didn’t get them. Like when someone dies and you say “I’m sorry” to the relatives. My reply was “I’m not saying sorry. It’s not like I killed them!” Dark humour right? Nope. I did know exactly who I was but that was someone who was clearly from another planet. I had been getting the distinct message from teachers and society in general that I was wrong in some way, which was upsetting and so confusing. It was due to my amazing friends and in-part to my parents unconditional love and patience that I managed to cling onto my sense of self. Although I have to say, some days I was genuinely praying for the spaceship that must have dumped me here, to come back for me!

    My naivety still effected me into my mid 20’s as a travelling temporary Admin Assistant where I wouldn’t be able to tell if groups of people were just humouring me and letting me hang out with them, as they felt too mean to ignore me. I would think I was genuinely friends with these people until others strongly hinted otherwise.

    Empathy and Highly Sensitive Emotions

    A lot of females with Dyspraxia and/or Aspergers feel emotions really deeply so things like a situation being unfair, involving us or another person can really bother us. When we empathise with some we really empathise with them to the point of feeling upset because they are and crying and we might end up crying with them! It took me all of my teens and 20’s to realise that even nice people don’t always behave in a fair way though, and just because you may have massively gone out of your way for someone many times does not always mean that will do the same for you.

    Me: You didn’t do that really important thing for me that you said you would.

    Friend: I was a bit busy with, er, something.

    Me: But I did that thing for you that time, even though it was really inconvenient for me, which you knew.

    Friend: I didn’t make you do it, that was your choice.

    Me: Whaaa?????!

    I realised that however that a) It’s not fair to expect everyone to be as emotionally involved and intense with everything as you are, including your friendship b) There is such a thing as being too nice to the point where people take you for granted or even take advantage. c) Self respect comes from setting boundaries with yourself and others. d) EVERYONE makes mistakes or forgets things, or stops paying attention, it’s human nature and it doesn’t mean they don’t care. However, it’s good to keep in mind just how regularly this occurs as they might be trying to tell you something!

    Coping with Change and Unexpected Situations

    I’m still getting there, day by day. However, I no longer have a melt down over takeaway orders being wrong – even if I’ve looked forward all week to the one thing they’ve forgotten to include. Recently my bloke suddenly suggested we go to a Thai restaurant in town which we’d literally just read about and which closed at 11.00. It was 9.30 so we had to go right away. I was in my PJ’s and in relaxed slob mode but I calmly said “Yeah let’s go”. I acted (notice I say ‘acted’) like a serene in control person the whole time I was putting together my outfit and tidying my hair and applying concealer all within a 20 minute time slot before the cab arrived.

    That would have been completely out of the questions 6 months ago. The mere idea would have been ridiculous to me because I would have immediately felt anxious. Anxious because I hadn’t expected and therefore gotten my head around what was happening. I’d have been in the totally different mind set of “Of course I can’t.” It also helps that I have a little black dress which looks great with leggings and black boots. Simple.

    It’s also about things not happening. Looking forward to going clubbing all week and then people saying they’re not in the mood. I’d be gutted. I’d planned it. I’d gone through scenarios in my head about it on a loop. ALL WEEK. I’d skip straight over distraught onto determined – determined that the person would go! Now I realise that’s selfish and slightly insane. I deal with unexpected situations a hell of a lot better these days. It’s all just part of life and no big deal most of the time. The unexpected can even be a good thing. That Thai place was great!

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    I hope this has helped people to feel a little less weird or to be proud of how weird they are. Remember that your neuro-diversity means you are just different (to Neuro-typical people) and not inherently wrong. And as comedian Francesca Martinez says “What the F**k is normal anyway!?”

    Chrissie

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    Successful War with the Department for Work and Pensions and Illness Update

    I’ll start with some good news first. I won my appeal against the Department for Work and Pensions – yay! I am so utterly relieved!

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    DWP Assessment

    Previously the DWP had ‘assessed’ me in the most pointless way – it was pointless because they literally awarded me no points, meaning that I was supposedly fit for work. I appealed with endless evidence from my GP and Neurologist who wrote me a letter especially for that purpose. I wrote a thorough list of notes on a copy of their report (which I had to request myself) addressing where they had taken things out of context and at one point completely omitted that I’d failed their memory test! Again the DWP utterly ignored all of this saying their original decision was correct and that I was fit for work.

    Tribunal Appeal

    I took them to tribunal where I faced two lovely and very understanding people with no government agenda who actually wanted to listen and understand me before judging my abilities. So with the evidence from my GP and Neurologist and the DWP report that I’d enthusiastically corrected in my best angry scrawl (blush) and my verbal testament and  written testament and my answers to their gentle and relevant questions, they concluded that my Neurology didn’t exactly fit in with the DWP’s points system but regardless of that fact, my fatigue, memory and spacial awareness problems rendered it too stressful for me to struggle with holding down a job and it would be at a detriment to my mental health – having previously suffered from severe depression after a never ending cycle of starting jobs, doing my absolute best, failing to cope and then being ‘let go’ from the companies.

    Phew and Thank You!

    There is absolutely no way I could have done this without the help of my family and friends and there support, advice and constant reminders to follow things up! Anyone who has managed to do this on their own is an absolute hero in my opinion. Online communities like Twitter and the Dyspraxia, MS and Sensory Processing Disorder Facebook pages and their members have been a massive source of empathy and knowledge also.

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    So what the hell is up with me exactly?

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    I have an autoimmune disease which means my body’s immune system is attacking healthy cells thinking they are invading and so destroying them. Unfortunately my immune system is actually attacking my brain and the myelin sheath that protects my nerves in my spine which is called demyelination. Unfortunately this is a  degenerative condition of which there is no cure for – some heavy shit I know! Fortunately there are drugs and exercises (mental and physical) to manage the symptoms (with varying degrees of success). My symptoms are so similar to MS my Neurologist has not yet ruled it out.

    So Practically Speaking….

    Basically the signals from my nerves are either very weak, don’t get sent or are slow to be understood by my brain and/or body. For instance my brain could ask my body to lift my foot up when going upstairs and my body’s response is either slightly late or my foot doesn’t lift up quite enough – oops! On the reverse side of that, I could have put a little bit of food in my mouth that is far too hot but because this signal from my body has taken a while to reach my brain I’ve already shovelled another spoonful in my mouth – ouch! I can see how dodgy nerve/brain signals can also effect memory and attention but why I get fatigue though I still don’t understand. I’ve been told ‘It’s just part of it.” It does take me a lot more energy to do things properly and to keep my thoughts straight than the average person but fatigue is a lot different than just feeling tired. It’s like the debilitating exhaustion of being really really hungover.

    And The Other Conditions…

    Along with that it’s clear I’ve had Dypraxia all of my life and to me personally I find that 80% of the demyelination symptoms are very similar but to a higher, even more unpredictable degree. Both the demyelination and Dyspraxia cause major sensory issues so I can also empathise with people who  have Sensory Processing Disorder. Because all of my different symptoms overlap so much I tend not to bother explaining that I have SPD because that is just a range of symptoms from the other two conditions I assume and not something that is separate (like it is for a lot of people).

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    I have no clue if anyone is a) reading this b) remotely interested. It’s here if anyone wants to use it as a resource for future reference or wants to understand the things I’ve mentioned a little better. If you have any questions just ask and I’ll do my best to answer them.

    Chrissie xx

    20 Sensory Things I love

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    1. Bubble wrap. Stamping on it or twisting it until non of it pops any more.
    2. Really chewy things like solid caramels, Black Jacks and fruit salads or cola bottles.
    3. Long tight hugs.
    4. Splashing through puddles.
    5. The feel of rubber grips on tools or those wobbly buttons on remote controls.
    6. Strong hot food and sour food. Garlic and chilli stir fry, fizzy sweets, grapefruit and curries.
    7. Stamping on closed polystyrene food containers and that dull cracking noise.
    8. Long tight-ish jumpers/cardigans where I can pull the sleeves over my hands.
    9. The gentle rocking of a train or the rise and fall of a ferry journey.
    10. Squishy things filled with water.
    11. Crunchy food especially the biscuit in cheesecake.
    12. Sitting right in the corner of the sofa or having a big cushion against me.
    13. Pillow fights! The heavy IKEA memory foam ones – I don’t mess about lol
    14. Having my back and shoulders really tightly tucked up in the duvet.
    15. Tightly holding glass marbles in my palm and grinding them together which sounds great and better for me than grinding my teeth!
    16. Just standing in the sea and feeling the push and pull of the waves.
    17. The squeaking of old leather boots.
    18. That scrunching sound fresh snow makes when you walk on it.
    19. Soft fluffy things like faux fur, chenille blankets, dressing gowns, bunnies.
    20. The feel of walking on soft wet sand or through crunchy Autumn leaves.

    autumn leaves new_0

    Apparently because I’m mainly (I’d say 80%) under-sensitive to a lot of things I’m a ‘seeker’ because I need to seek out sensory things, rather than wanting to avoid them.

    I’d say everyone can identify with at least some of the things in this list, which ones do like?

    Chrissie xxx

    Weird & Wonderful Links #5

    Louisville Leopard Percussionists (4th-6th graders) cover Led Zeplin – Incredibly talented kids wow!

    Shirt Woot tees for geeks, gamers or people into clever kawaii.

    Teepublic my fave tee of Hiccup from How To Train Your Dragon done in the style of Le Chat Noir by Rodolphe Salis

    Screen Shot 2015-08-19 at 15.09.43

    The Flash Season 2 first look – Their not giving much away but it still looks epic.

    Marvels Deadpool trailer – One badass superhero!

    A Guy Is Leaving Funny Tips In Shops Disguised as Information Boards For Shoppers

    hilarious-prank-fake-shopping-tips-grocery-store-obvious-plant-jeff-wysaski-5

    An Unusual Friendship Between a Bear and a Wolf – Awww!

    Back To Nature Part Three: The New Forest – I love nature but don’t get out in it nearly enough. This is a blog series by More Than Greens which covers her visits to some wonderful places in the UK.

    Struggles Only Geek Girls Understand – Frustrating and funny at once.

    26 Truths All Gamers Know – I’m not an obsessive gamer but I’ve played regularly all of my life and I can definitely identify.

    19 Amazing English Words We’ve Totally Forgotten About Why is there no interrobang on a keyboard!?

    17 Illustrations That Anyone With ADD Will Identify With – This is so on the money.

    Dyspraxia and Autism – The Overlap – Natalie explains everything perfectly and in a really comprehensive way.